Quantum Reflex Integration

She Loves Her Laser! (NKH)

So I’ve had my laser for about 2 weeks now and I guess it’s time to post a progress report to anyone new or thinking of trying it. Forgive me if it’s long winded but my daughter has a very rare condition, NKH and has a lot of weird and crazy aspects to her health and behaviours as a result of it. Lycine encephalopathy, also called non ketotic hyperglycinemia (NKH) but everyone mixes it up with non ketotic hypoglycemia which is basically diabetes. NKH is a terminal metabolic disorder where you can’t break down the amino acid glycine. There are about 500 to 1000 surviving cases worldwide but almost all are under 5. Me and Dorrie are incredibly lucky to have less affected kids with NKH but they are still very delayed, physically and mentally disabled, lots of medical issues and huge behavioral challenges.

Alice is 5 and although mentally about age 3, things like her fine and gross motor skill are probably even further behind. She can walk around the house and at school but uses a wheelchair for most things, she has lots of words but is difficult to understand, is 50/50 toilet trained (poos being abut 90% hit rate but wees not so much). Our big issues are actually psychological. Extreme anxiety, constant tantrums and screaming, raging OCD, aggression, self harm, hitting and biting of others, irrational freak outs and hissy fits over everything and nothing etc etc. She is also a terrible sleeper, waking several times a night and only sleeps through if sedated (it is a part of her condition so not unexpected) but can also wake with night terrors, tantrums, screaming fits and so on.

We only finished the protocol today as despite doing it daily I spent the first few days on just Prep and 1 to 10 to prepare her. I also went over Moro and FPR a few times before moving on as her fight or flight and anxiety was our biggest issue.

So what are my findings?
1/ She loves her laser! Someone on here called it a “Princess Laser” so I stole that idea and my god does it work. She asks for her Princess Laser daily and actually cries when we have to stop. She doesn’t sit still for it but she’s getting better.
2/ Biggest change would have to be mood. Her affection has skyrocketed as has her ability not to melt down. Falling over is now punctuated with “Ouch, I fell down” rather than an hour tantrum and she will finally accept a kiss or a hug to make it better. Stuff still upsets her but to a more “normal” level. Her mood in general is SO much happier and I’ve noticed lots of silly/fun behaviour rather than looking like she’s waiting for her opportunity to kill me!
3/ Verbally. Wow this has just gone nuts. So far no improvement in pronunciation but more words being used and putting more together. More use of “I” and “me” and “he” and “she” rather than talking of herself in a third person ie “Alice share Mummy” is now “I share with Mummy” and Alice did it” is now “it was me”.
4/Sleep. Not sure on this one. I think things are changing. She’s going off better than she used to but still waking a lot. She’s only slept through once in her live without sedation so it would be an effing miracle if we cracked this already but she is waking happier and less screaming on waking.
5/ Toilet training no change yet.
6/Gross and fine motor no change yet but she is asking to be carried less so I suspect although I can’t see a change she is feeling more stable.

Anyway so far it’s already been worth every cent and I cannot express enough how much we needed this. We were in a real mess, all drugs had failed (thankfully with hindsight) and with this and introducing CBD oil a few months back I am finally really and truly enjoying being with my daughter. Actually I forgot to add that she looks different! Its hard to explain but kids with my daughter’s condition can look a bit vacant or kinda gormless (god that sounds awful but I hope you
understand what I mean). Since the laser she just looks more “in there” like she more switched on and brighter.

Update: November 25, 2016
This is the Alice I adore. We have her back and better than ever. This is the girl fighting to be herself and when we get it right with treatments and medicines (or lack of), she is so damn awesome. Less meds than in her entire life, cannabis oil and daily home therapies using a cold light laser and a technique called Reflex Integration. Thanks Vanessa Hay for all her care and taking her to all these great places and thanks Bonnie Brandes for helping me learn the therapies. If we can keep this up she will rule the world.

Update: December 5, 2016

Alice continues to make great progress. It’s hard to fully explain how different she is. Not so much in skill yet but in behaviour mood and happiness. Its not an understatement to say its been “life changing.”

All our kids have different conditions but I am a firm believer that they are all “in there” somewhere, no matter how disabled. I’m so pleased you are finding your son. My daughter is about 6 weeks in and my god I love her. To be honest I wasn’t that keen on her before!!! I have the scars to prove it, quite literally. So happy for you, a head on your shoulder is priceless isnt it?

Update: December 6, 2016

Everything happens for a reason. Its all a big patchwork really and seeing what it has done for me and Dorrie’s son just makes me so hopeful for others, NKH has virtually no treatment options. The severe don’t make it out of toddlerhood and the mild often end up in homes due to aggression and self harm. Right now I have a very happy, funny, playful, sweet. loving child with a disability. A few months back I had a screaming, tantruming, self harming, vicious biting, scratching and angry child who clearly hated being her. I really hope this is a break for NKH parents. God knows we need it.

Update: December 7, 2016

Thought I’d share a more few great things I’ve seen since laser. Now I fully appreciate some would have happened any way and I also feel a lot of the reason we are developing faster is because we are no longer constantly melting down or screaming and tantruming. However without the laser the endless meltdowns and aggression and OCD etc would not have stopped so either way, the laser is at the core of this.
1/ Alice put on her first item on clothing 100% unassisted. A pair of shorts.
2/ She said her longest sentence yet “Look Mummy Christmas lights, I show you. Santa. Not yet”
3/ Instead of trying to kill and maim me she says I’m “her Honey” that she loves me “one hundred million and sixty eight” , that I’m “a good Mummy” that I’m “a princess” and that she “misses me so much”. Now we have had bits like this in the past but only when shes having a good day and not all at once. I know get this all day.
4/ She walks around counting to 15. Again she used to do this but I haven’t heard it in over a year.

This is all on top of the HUGE improvements in mood and behaviour. Interested though has anyone had detox symptoms in the form of an upset tummy? We seem to be getting a lot of big “evacuations” for want of a better word!

Update: December 19, 2016

I’m 1000% happy with my laser. Life changing beyond my wildest expectations. My daughter is not DS but CP, GDD, ADHD, OCD, Self harm, aggression, anxiety and so much more. Three months ago she was satan and foster care was even on the table. Today I cannot put her down, I love love love her so much and if her condition doesn’t end her life early it will be my relentless kissing.

All our kids have different conditions but I am a firm believer that they are all “in there” somewhere, no matter how disabled. I’m so pleased you are finding Eric. My daughter is about 6 weeks in and my god I love her. To be honest I wasn’t that keen on her before!!! I have the scars to prove it, quite literally. So happy for you, a head on your shoulder is priceless isnt it?

Everything happens for a reason. Its all a big patchwork really and seeing what it has done for me and Dorrie’s son just make me so helpful for others, NKH has virtually no treatment options. The severe don’t make it out of toddlerhood and the mild often end up in homes due to aggression and self harm. Right now I have a very happy, funny, playful, sweet. loving child with a disability. A few months back I had a screaming, tantruming, self harming, vicious biting, scratching and angry child who clearly hated being her. I really hope this is a break for NKH parents. God knows we need it.

Update: December 27, 2016

Leaving the house before laser:

“Nooo Mummy no go, no go NO GO!!! Cuddle, cuddle, cuddle, no doctors, sing twinkle, no doctors, i so sorry, i so sorry, Mummy sing twinkle, no go, no go!!!!!….”

Leaving the house after laser:

Bye Mummy.

QRI, Now He’s a Total Chatterbox!

QRI Update: October 18, 2016

QRI, Now He’s A Total Chatterbox! Okay so it’s hard to explain some of this stuff because it’s about just “knowing” my son. But this morning he woke up a TOTAL chatterbox. I mean, he’s always been verbal (albeit often near-impossible to understand). But this morning was much different. I opened the front door to get the newspaper, and he was so observant, “Mom, look! A spider! Mom! Look! The MOON!” (which was still nearly full land so big in our morning sky even as the sun was coming up. His speech was just subtly clearer and his sentences more formed. “Mom, where’s dad?” instead of just “Dad?” and when I was telling him to come sit-down to eat, he got angry and said, “Mom, stop it! I have to go potty!” and then proceeded to do so including closing the lid, flushing and washing hands which I usually have to remind him to do verbally – if not help him with (in his less complaint moments). When his dad woke up, “Dad! There you are!” and when he was driving me nuts, I said, “Go sit on the floor and work on your puzzle please.” He stomped to his puzzle and said, “No, I’m cleaning up!” and he put the puzzle away and just looked at me as if challenging me to defy him. (that’s pretty normal actually LOL). But the LANGUAGE instead of just using his body to pitch a fit!” His father was trying to feed him his applesauce w supplements and instead of just pushing the spoon away or slinking away from his chair, he said, “No dad. Stop it. I want mommy.” When doing his reading homework, he was NOTICING when he was turning more than one page at a time and he corrected himself. For the first time ever, I left him alone to do his reading book at the table and he did the entire book A-Z on his own (generally I have had to be right next to him to keep him attending). There’s just something profoundly more integrated – overall- about him.

Hands Grasping makes me bonkers. BUT this will keep me motivated. LOOK at how he’s holding his fork.

I want to add that the one thing I’m bringing to these sessions now that I had not been bringing to anything that I’ve done with Alex for many years is this: I pray to his angels and to other beings who I know support us and I say, “I cannot do this alone. I can hold the laser. I can breathe. But I need you. Alex needs you. I’m showing up and doing my part, now you do what you will” and various forms of that prayer. I am not a religious person but a very spiritual one and looking more demandingly to Alex’s angels and others to take the reins (which means, I have to let them go) has been huge in our day-to-day since I have come back from my two week “Escape” from life a month ago. Just wanted to offer that because I know I’m not the only mom here who feels the weight of the world on her shoulders sometimes. And lately, being on my knees asking for help has been a huge pathway to breakthroughs that are profound although difficult to articulate. I realize that Alex’s birth put me on a major crisis of faith journey. And it seems also, that he is demanding that I resolve and restore much of what had to fall apart in order to be rebuilt.

QRI Talk Program, Heidi McLarty

QRI Talk Program

by Heidi McLarty

QRI

I have practiced as a pediatric occupational therapist for 10 years, and have had a lot of training in various sensory integration techniques as well as in methods of reflex integration. I had also completed training in the Quantum Reflex Integration (QRI) program, but up until fairly recently, haven’t had much opportunity to use it. I was interested and somewhat skeptical about purchasing the new specialized programs that have recently been offered to use with the QRI program, but one of my clients I have worked with for awhile was interested in trying out the specialized program related to Speech with me. So I decided to give it a try. Here is my story, I have been amazed at the changes that I have noticed after using this program with my client!

Danny is a 5 year, 4 month old boy with Autism Spectrum Disorder. I have been working with Danny since August of 2014 incorporating various occupational therapy techniques related to help Danny with sensory processing and self-regulation skill development. Danny was noted to be a very busy boy who had a hard time sitting to focus on activities, but instead loved to seek out all kinds of movement input through jumping, running and crashing. When I would visit with Danny, I felt it was incredibly difficult to engage Danny in any type of sit down fine motor or play activity, because he would quickly get up and move around the room. When I would try to interest him in an activity I would show him what to do and try to take his hand and encourage him to hold and manipulate things. He always seemed to make his hand go limp and would not even hold any of these items (even toys I thought for sure he would be interested in!). I wondered if he was showing some significant problems with motor planning skills and didn’t know how to use his hands to manipulate toys or understand about functional play skills. Danny seemed to be using body on body and body on object play and I did not observe him to use the highest level play, object on object play. During my visits with him and his family, Danny often repetitively threw a ball up in the air and caught it or preferred to jump on a trampoline. He did not seem to engage with anyone in his environment for very long, using fleeting eye contact and very limited and infrequent speech sounds or words. When Danny did attempt to communicate he would look briefly at someone, grab their hand or make an attempt to use some sounds or single words. Receptively Danny seemed to be able to understand directions and seemed generally aware of what was going on around him. Even though Danny seemed to understand directions and what was asked of him, he rarely seemed to respond to requests such as cleaning up his toys. He showed a limited awareness of referencing others using eye contact.
Danny’s Programs
Danny had been engaging in an intensive daily Therapeutic Listening program since mid August of 2014 to help him with sensory integration and self-regulation, and he had also been engaging in some specialized rhythmic movements as a home program from the Rhythmic Movement Training Program to further help mature his nervous system. Danny’s parents have noted positive changes in his behaviour through the use of these programs over a period of 4 months. They noted that he seemed more regulated and aware of his environment. In mid December, I had informed his parents that I had received a specialized laser program called QRI Talk and noted that I would like to try this program with Danny. This protocol involved using the QRI laser along with a special LED attachment on certain points on the body as well as using the laser to integrate 3 specific reflexes. I initially tried the protocol with Danny (running through it twice) on December 20th, 2014. During this session, I brought a small Tupperware bin with rainbow rice in it for Danny to explore while I completed the protocol with him, as his parents noted that something highly sensory like this was needed to keep him sitting for a long period of time. Danny was able to sit for a period of about 45 minutes playing with the rice, but was noted to move his body around a lot, even in sitting. I had requested the parents to take a note of any potential changes they noticed after this session. When I followed up with Danny’s parents in the New Year, they were happy to report that Danny had shown some tremendous improvements in his behaviour after the first session and that the improvements had lasted! (it had been just over 2 weeks when I contacted them). They noted that Danny was more interested in the world and what was going on around him and he was able to show more patience and better behaviour in activities like going for a longer ride in the car. They expressed interest in using the program intensively for a period of a week or so.
QRI Talk
We started using the QRI Talk program with Danny intensively after school daily for 5 days one week and 4 days the next week for a period of about 45 minutes each day. This allowed me to go through the QRI Talk program 2X each day. For the first week I brought the rice with me daily for him to play with while I used the laser. On the 7th day, I decided to move the rice away from Danny and play with some other toys in front of him. To my amazement, Danny was very interested in all of my other toys and started playing with them like I had. This was something I had never seen Danny show any interest in! He was turning small twist toys to make them work, playing with a rapper snapper tube that you pull out and push in, activating my claw toy to pick up items, feeding my toy dinosaur rice, scribbling on a magnadoodle and imitating basic lines up/down, side to side and circles, and he was noted to take buttons out of putty. His mother also reported that Danny had started eating with a spoon during the first week of the program, something that he had shown limited interest or awareness in before. For the 8th and 9th session, I engaged Danny in playing with a variety of toys, which he happily played with in their correct way. He even started engaging in playing with my marble works game with me (something he showed limited interest with in the past). He no longer needed the rice be able to sit to get the laser work done because he was interested and engaged in a variety of activities! In terms of his speech and language progression, he was noted by his parents to be repeating a lot more words and sometimes putting two words together much more frequently than before. His parents also noted that Danny seems to be saying words that sound more closely to the word he is trying to say, for example, his “good night” has become very clear and almost perfect, as compared to before when he would try to put two works together and say them really quickly such as “goonight.” He showed a dramatic increase in his eye contact and his interest in others around him, and would often look at me and smile when I was completing the laser program with him. Danny’s parents reported that this interest in others and eye contact has lasted beyond the intensive treatment protocol. One big thing they notice is that Danny is now able to react happily and playfully by smiling and laughing when someone interrupts what he is doing. For example, recently when he was playing repetitively by putting his feet into his father’s shoes, his older brother came along to have a turn to do the same thing. Danny smiled and laughed when his brother did this, as compared to before when he would have gotten very upset because his brother was interfering with his routine.
Results:
During the 2 week intensive where we completed the QRI Talk program 2X daily for 9 days (during the week days), his teacher and support staff at his school were not aware that he was engaging in a specialized program after school. I checked with them a week after completing the intensive program and they mentioned that they had recently noticed some pretty significant changes! The most significant of which were improvements in Danny’s attending skills to what was going on in the classroom as well as an improved attention to task. They noted that Danny participated more in activities with the class and needed very few prompts or reminders to do things like put away toys after finishing with them, or picking a new task to complete, or check his visual schedule. They explained that now Danny was completing a task, going to put it away and check his schedule right away, instead of wandering around the room and requiring several prompts as he required before. The school staff also reported that Danny seemed to be engaging in more functional play now with toys, rather than mostly “stimming” with toys before. He was showing an increase awareness of his peers and was using eye contact a lot more to attempt to engage his peers in play such as when jumping on a trampoline with another student. Danny was also reported to show more awareness of his own needs/adaptable responses such as covering his ears when someone else was crying (as before he was noted to not seem aware that anyone was crying and did not respond by covering his ears). Danny was also reported make a funny face and laugh appropriately at a teacher when he had made a joke! Danny was noted to be repeating more words at school as well. In addition to all of this, Danny also seemed more affectionate and cuddly with staff (which seems could have been a result of his increased engagement but also due to the fact that Danny had been in the classroom with the staff for 5 months).

After this 2 week intensive period using the QRI Talk, we took a week break before starting Danny with the QRI ASD protocol. We started using this one for 45 minutes (getting 2 runs of the protocol done each day) for 3 days the first week. Danny was noted to show more referencing with eye contact when engaging in activities and continued gains in engagement and functional play skills. His mother reported that on the weekend after starting the QRI ASD program, he was playing tag with his older brother! This was something that he had never done before! We used the QRI ASD program again 3 days the next week. His mother reported that he seemed to be showing less repeating of words lately and was questioning whether we should switch back to the QRI Talk. His parents noted that they are pleased that Danny’s changes have lasted, especially things like his improved eye contact and engagement in his world. We are taking a couple of weeks break and I look forward to more exciting changes with this child and others!

http://www.superiortherapyconnections.com/

Frequently Asked Questions

How do I get started using QRI? If you are new to primitive reflexes, a good way to start is by ordering “The Symphony of Reflexes” on Amazon. Your next step is to order the QRI Home Program which includes an online class. Feel free to call QRI with your questions. 352-228-0410

Is this something a parent can learn and do at home? Yes, most of our clients are parents using the program in their homes. The program is easy to learn and most children love it. Many Parents see other children to supplement the cost of the program and laser.

What do I need to purchase? You order the QRI Harmonic laser, which comes with two laser heads, a free QRI Home Program, an online class, and carry case. There are other programs for speech, cognition, ASD/speech/behavior, sensory integration/movement, Unity (for DS and neuro-fragile children, grounding) that can be added now or later.

Who do I contact for laser operation and warranty questions? Please contact Michael Esch directly (not QRI) at michael.esch@vitalcreationsinc.com.

How long is the online class? It is broken into short segments that enables one to watch at their convenience.

Will the online class be enough for me to follow the program? Yes, the instructions are clear and easy to follow. If you plan on seeing clients, you will probably want to attend one of the live Quantum Reflex Integration classes to learn shortcuts, new info, and how to assess primitive reflexes.

What behaviors might I see during a Moro reorganization or detoxification as we begin QRI sessions? The Moro reorganization is a stage often known as the “terrible twos” that is often missed in children with neurological challenges. Brain reorganization and laser detoxification may not be noticeable for many children, but for others you may see appetite changes, sleep disturbances, mild emotional disturbances which may last between 2 hours to 1 week, rarely longer.

*Children with Down syndrome tend to have a more noticeable reaction, but also tend to make rapid progress afterwards.

*Do your best to be patient and don’t panic, it is an important stage for further development the child has missed.

What is the CMT? http://localhost/wp/crystal-matrix-transmitter-cmt/

I can’t do most of the protocols when my son is awake but so I do it whilst he’s asleep, however he gets awaken by the sound from the CMT. Can I please turn it off? Will it make a difference in terms of the result if it’s turned down? You have to run the CMT anytime the laser lights are turned on for 2 reasons. First, it cools your laser diodes to keep them from overheating, which shortens the life of the lights. Second, the CMT is what makes the Harmonic laser therapeutic, the frequencies are very important for health and reflex integration. So just turn it way down and it will still work.

Will the Harmonic laser integrate primitive reflexes without doing any of the movement exercises? Yes, it will! Movement of some type for everyone is important for our health and for reflex integration. The “Brain Boost” techniques are especially important for those seeing a therapist for QRI once or twice a week to support and stabilize reflex integration. Often Brain Boost techniques will be sufficient for those not using the Harmonic cold laser with mild learning disabilities to integrate their primitive reflexes.

Is it ok to just do 2 or 3 of the hand grasping positions? Yes, I recommend doing 2 a session.

Are the “acu-reflex points” that are mentioned specific acupuncture points of the body? or something else? Some are acupuncture points, many are not and used specifically for reflex Integration within the program.